So the Sunday before the cath, we did nothing. Now that is not all true, we cleaned bedrooms, did laundry, packed a suitcase, toys, electronics and books. In the morning before getting dressed and accomplishing those things I looked over to find this....
| Snuggling on the couch |
| I love you |
| I lus you too. |
We finished Sunday early. We got everyone in bed and mommy couldn't fall asleep until around midnight. Then Lily decided to get up around 2. She stayed awake until 3:30 and mommy was up to stay. The alarm was set for 4:45 so we could get to Egleston on time. We got up, got dressed and got in the car. We arrived at the hospital around 6:05 and were done with check in by 6:15. Lily had a grand time playing with the toys in registration as well as the cath lab. She, Papa and Daddy were playing with cars when they called her back. She got very upset and said "No Doctors". Unfortunately since that is what we got up so dang early for mommy was insistent on going back. Lily was weighed and measured , I have no idea what the measurements were, they do not use pounds or inches which drives me nuts, plus 2 hours of sleep not so good for the brain. We then put on our personal hospital gown and got settled into the hospital room. We answered all the same questions, when did she last have food, what medicines is she on, name, date, diagnosis....at least 3 times. We met the Cardiac fellow(not a self practicing cardiologist yet), the cardiac anesthesiologist Dr. Tassone(LOVE him), the interventionist cardiologist and director of the cath lab Dr. Vincent and lots of great nurses. Then it was time for the versed, the wonder drug. Makes everything ok and Lily so loving. Wish they would give me some. :) Two hours later she was waking from anesthesia, and fighting all the way. Uunfortunately she needed to be still for 3 hours so that she could let her veins heal and not bleed. So after soothing didn't work, it was a shot of high powered pain killer to sleep off the nasty anesthesia. She slept in my arms for almost two hours. Upon waking she had 2 juice boxes, Honey Nut Cheerios, half a banana and some chips. She got angry at the IV line being taken out. Took 3 adults to hold her down to get it out. She hates the stickiness of all the bandaids, and tape they require to keep her IV's and EKG leads etc in place. Then we came home for our week of keeping Lily still and resting.
Well let me tell you a little something. Quiet is not in Lily's vocabulary. We got our tutu from Miss Priss Tutus in the mail, that we won via a drawing on Facebook from Emmy's Got Style. It is beautiful but we did not put it on our Miss Priss because we were afraid it would induce fits of dancing and jumping that she was not supposed to be doing.
We spent Wednesday at the mall, with Lily in the stroller to keep her still. We bought father's day gifts, ate lunch, went to build a bear, rode the mall train and went to the Disney store. Then we got a milkshake on the way home. On Thursday we had to make a run to the grocery store and Grace had a swim meet that night. Thank goodness for Grandma and Papa staying home with Lily.
And then the week of staying still was over. We are still not allowed to touch her boo-boos, diaper change is a struggle. She still has sticky residue from the skin like bandage they first put on. But she hasn't had a bandaid on since 9:00 Thursday night and looks pretty good. Just a bruise on her left hip.
Thursday morning this arrived via the UPS man and we are so excited. We had to open it immediately and try out the red cookies.
| Yummy! |
| Sank you gamma! |







1 comment:
Ack... Keeping little ones down is HARD. I will say a prayer that she is unusually sleepy this week :-)
Keep us posted on how she's doing!
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