continued prayers

Lily did NOT have a heart catherization and valvuloplasty this morning. Before beginning the procedure another echo or heart ultrasound was done where the doctors determined that it was not her aortic valve but the area above the valve. This means that somewhere in the next couple of months she will most likely undergo surgery to open the area to reduce the pressure put on her heart. This is major surgery, but may be a better diagnosis for the long run, only one surgery versus multiple. The surgery is called a patch and we will let you all know more when we do, not until sometime next week. As for now the doctor said to treat her as a normal baby. Thank you for all your prayers. After spending the day at Egleston we feel so lucky to live near a major heart center such as this. The nurses, doctors and technicians were all wonderful. We ask that you continue to pray for Lily and we will keep you updated as best we can.

Tom and Sarah

Happy Thanksgiving!

Happy Thanksgiving. As we look forward to a busy, hectic, scary week. I am reflecting on all the things we are Thankful for. We are thankful for our almost 5 year old, our wonderful supportive family, our loving friends and neighbors, our beautiful baby girl and the spirit of this holiday season. Hopefully after Lily's procedure on Wednesday we will be able to add to this list. Take care and we will update this soon.

Prayers

Lily had her second visit to the pediatric cardiologist today. Unfortunately her pressure numbers have changed enough that she is no longer considered a mild case, more moderate to severe. Next week sometime she will go in to Children's Hospital at Eggleston for a heart catherization. If while they are in there a procedure is deemed necessary they will perform it at that time. We were hoping to put off the procedure longer than two months after birth. We are in a state of shock. She had seemed to be doing so well, even recovering somewhat from a medicine change for the acid reflux. I ask you all not only to pray that all goes well, but for our sanity too. We are not sleeping and with this procedure looming ahead I don't know how we will. Also next week is Grace's birthday and we don't want anything to take away from her celebrating the big five. Maybe one day we will be able to pick up the pieces and get organized, in the meantime - laundry, house cleaning and leaves be damned. We are snuggling with our baby and loving on our big girl - God's two most precious gifts to our marriage and lives.

Bright Eyed and Spitty

Lily's new nickname is spitty. She has acid reflux pretty badly. She is on the expensive formula about $9 a day. She takes Zantec twice a day and mylecon in between. She sleeps best in an almost up-right position on mommy or daddy's chest. Today alone mommy went through 4 outfits and Lily went through 4 t-shirts and 3 outfits, and we didn't even go anywhere. Hopefully one day the acid reflux will subside and we will all get some sleep until then we are the grumpy family with the dark circles under our eyes. Mommy can't wait to gain the use of both limbs and recover a few brain cells. Until then speak slowly and repeat yourself often, we will respond probably just not on the first try.

Politically Minded

Grace was very excited to go with me to vote. She sported her own sticker and everything. Unfortunately her candidate did not win.

Tagged!

We were tagged by the Hughes!

Here are the rules.....

1. Post the rules on your blog

2. Write 7 random things about yourself

3. Tag 7 people at the end of your post

4. If you are tagged, just do it, and pass the tag along!!

Wow, seven random things, let's see.

1. My most interesting job was in Knoxville, Tennessee, where I worked as a short order cook in a restaurant that served only lunch and catered special events. I dished out the chili, specials and made salads and sandwiches. There were only six employees, including the owner and head chef. It was a wonderful place to work and when I left to follow my degree related jobs I missed them horribly.

2. I hate to wear shoes, or socks. I prefer to be barefoot inside my house even in the dead of winter. I do wear slippers now due to my husbands persist ant coaxing. This seems to be hereditary, just ask my Dad.

3. I yell and scream at football games. I blame it on my husband that I can't watch my Alma mater play on Saturdays, but I tend to get just as upset. But hey I have been watching the hokies since I was in diapers.

4. I am a chocoholic. I eat chocolate so much that I even eat it on my waffles in the morning. I cannot stand maple syrup and this makes breakfast for me enjoyable. The problem is it is starting to rub off on Grace.

5. I hate clutter and messes. However I am the worst housekeeper ever. I am very lucky that I have a husband who is helpful and vacuums for me.

6. When I was a child my aunt nicknamed me Sasadoodles. So when I got my first car, my licence plate said SASADOO. It was a teal green Chevrolet Beretta with pink detailing. I cried when Tom and I traded in the car at 11 years old for our Explorer.

7. I love Disney World. I have been so many times that I have lost count. I also have my own history with Disney magic. Every time that I have gotten pregnant has coincided with planning a trip to Disney World.

Halloween Fun

We were very excited to celebrate Halloween this year. Grace started off with a costume parade at school. Lily and Mommy went to cheer her on and see all her friends costumes. Of course our mornings here in Georgia have been unseasonably cool, in the high 30's or low 40's. Lily wore her costume over her clothes for extra warmth, since the parade was outside. I took the pictures in her costume as soon as we got home.

Staying quiet in line

The class

Little Punkin

As for Halloween, we celebrated with our annual street party. This year was Pizza, veggie tray, chips and desserts. Then one parent sits in the street passing out candy as the other parent takes the child for treats. Grace was excited to go with her cousin Taylor as Mickey Mouse and her two best buds - Joshua the Astronaut and Caleb the firefighter. Lily stayed home with Grandma and slept. Tinkerbell had the whole light show going on, her wings lit up, her wand lit up and she had two glow sticks. She and Joshua were up for lots of houses while the younger two pooped out early but hung in there until Tinkerbell and the astronaut could be convinced to fly on home.